You can still say walk and people shouldn’t have to change their lexicon just to suit you (in a wheelchair) and not offend you. Were strong and we don’t get offended.
That’s about all I have to say. But here’s some more.
When I go for a walk, I’m still in my wheelchair, but I call it a walk. When people talk about going somewhere, they don’t need to say “roll” or “wheel.” People do that out of respect of course.
Some people have preferred pronouns, but for me at least, this is nothing like that.
My message to the world is that you don’t need to change the word “walk” with “roll”, I won’t be offended. Expecting someone to change how they talk on behalf of you is silly, in the context of being in a wheelchair. The wheelchair is not a part of me. I dont get offended if you do say roll. And I stand up for what I believe in. And I do make jokes sometimes because I don’t take it seriously.
The perspective I’ve had since day 1 is that I’m just sitting down. If you’re reading this standing up, sit down and think about how you feel. You’re still you, nothing really changed except that you’re just sitting. Imagine that you can’t stand up. Still, nothing really changed except that now you’re just sitting and you magically can’t stand.
Here’s a quote and then we’re done.
I support anyone’s right to be who they want to be. My question is: to what extent do I have to participate in your self-image?
-Dave Chappelle, comedian, actor, writer, and producer
Fitness is extremely important. Of course it is and you know that. But do you really know?
I could go on and on about a lot of things and you would diligently listen and say, “Yeah, I know that,” or “That makes sense, I can understand that.” Something I believe (and it makes sense) is that you don’t really know unless you’re actively practicing.
Here’s an example. I was talking with a new friend and we found ourselves talking about personal development – something I’m always learning and doing – and I was telling her about how important it is to journal everyday and I gave some familiar examples such as Einstein and Leonardo da Vinci. My friend doesn’t journal, but she said something like, I know journaling is important and has many benefits but… and even you reading this right now, you know journaling is important just as you know that being healthy is important. Eating the right foods for your mind, body, and soul as well as the right exercises.
So although you may know that fitness is important, are you actively practicing?
Why not? Why should you start being more active and healthier?
Seriously answer these, write them in your journal. Write down 3 reasons why you don’t eat healthier or exercise more and write 3 reasons why you should. (at least make a mental list if you won’t write them out).
If you’re already working on fitness and living healthier, you can skim through until you reach the resources at the end.
There’s a high chance you’re in a wheelchair or know someone in a wheelchair. Or you’re my family or friend and thank you for supporting me ❤
When it comes to being in a wheelchair, being fit and healthy becomes super-duper extremely important. Think of why that might be. Then compare with my reasons + explanations below.
You can do more. It sounds simple but think of all the obstacles you face in a wheelchair. If you’re not fit, then people can’t help and lift you up. If you’re not strong, then you won’t be able to lift yourself or even get up a hill.[YouTube link for hill]. If you go to my YouTube channel, you’ll see that being both fit (low body fat) and strong allows me to get into airplanes along with getting carried up stairs by others. Going up stairs without help is hard. I’ve done it many times and I sweat on every occasion because of how difficult it is, even when you’re very strong.
Self-confidence. A lot of people have low confidence as they are, then put them in a wheelchair and it’ll get a lot worse. Personally, I don’t have this issue and that’s in part because of my high fitness and health. I see this in other people and if you’re not healthy, then you’re naturally going to not be as happy as you can be, you might be scared to take off your shirt in public and now you’re impinging on what you do.
Independence. When it comes to being a long wolf, it’s a lot easier if you’re strong and fit because you can easily help yourself. Also, once you reach a certain level of strength, people see that and they won’t try to take advantage of you, which can be a concern if you’re in a wheelchair and go out alone.
Recovery. I’m not sure about you, but I’m going to recover and when I do I’ll be ready. When it comes to the future, its completely unpredictable. We can sure try, but all knowledge is based on the past. We can make a prediction, but it never becomes more until it’s proven, which would mean it’s part of the past. You may not recover, but then again, you just might. The best we can do is just improve the odds. Improve the chances of recovery. Being healthy and fit will definitely improve your chances of a successful recovery. That includes stretching.
Live longer and feel good. Sure there are people who are unhealthy and live long, but again, improve your chances of a longer, richer, and more fulfilling life by leading it with health and fitness. When you eat the right foods and exercise frequently you feel good. Scientifically speaking, its been proven many times and told so many times that it’s almost been dismissed and taken for granted, but if you’re feeling a little under the weather, go for a walk with nature.
So now that we know the importance of being healthy, how can we put it into practice?
It starts with diet. Then building up the habit of exercise. And you never stop. You should exercise every day, but if you need to take baby steps, try 3 times a week and build up.
The best advice I’ve gotten when it comes to introducing new things into your life is to only do it for as long as you want. Meaning that if you go to the gym, don’t force yourself to be there for an hour if you only enjoy the first 45 minutes, only do it for as long as it’s enjoyable, otherwise you’ll begin to dislike it – the opposite of what we want.
When it comes to diet, the best way to have discipline is to avoid needing discipline. You need discipline to not eat candy or unhealthy snacks only if they’re in the house. It starts with only buying healthy foods and having them be all that’s available. As a personal rule, I don’t eat any fast food, drink pop, or eat chips and most other snacks.
I’m not certified in any field of fitness, but I am a bodybuilder and I actively learn about health and fitness as well as put it into practice. I’m just sharing what’s worked for me (above and below). If you aren’t able to do certain workouts, always just do as much as you can.
Here are some resources for health and exercise to get you started. And remember to always challenge what you hear, but accept it if you’re wrong.
First video in the series of gym videos from my YouTube channel
Also, when it comes to staying healthy, massage therapy is another great thing to look into.
Immediate actionable items: Start leading a healthy life right now. Get rid of any unhealthy foods in your house and around you (not by eating them) and make a weekly plan for exercise. Such as walking every morning or evening and going through a workout routine at a set time each day or every other day.
Summary: There are 6 big reasons why fitness is important. Even more important is to start implementing a good diet and exercise right now.
Overdeliver: As a little self-confidence boost and something that is entirely NOT my idea, but I was doing it before I realized it was common advice: ask for a discount. You might’ve heard this before, but just ask for a discount. Sometimes I’ll jokingly ask if they have a wheelchair discount or a handsome man discount. Student discount if you’re a college student. It’s fun and helps build up confidence.
When you first get injured, there’s no doubt that you’re flooded with a white water rush of those negative thoughts. We’re almost wired to think about the bad things in life, if not from our primitive roots, it’s definitely been inhibited through our comparisons on social media and a generally gloomy world, maybe not totally but more than the peace, love, no war 70’s. If you’re really into psychology, there are some very persuasive explanations for why we’re more gloomy than before.
While the grey skies clouding our sun, adding a truly life altering injury doesn’t exactly bring out Mr. Blue Sky. Or does it?
Ultimately, it’s up to you whether you use your injury to your advantage or let it use you.
Because I’m feeling good, I thought I would inform you or remind you that being in a wheelchair can actually be a quantum leap to heights that would otherwise take a lifetime. In short, this is a non-exhaustive list of the benefits of being in a wheelchair. So, if you’re new to the game and you’re not sure what to expect other than negatives, here are the positives that outweigh it all.
In a list + experience format, here is a short list of the grand benefits that answered the door when my caffeinated mind knocked and asked, “what are the benefits that make being in a wheelchair so nice that I almost want to stay. Almost.” (and that I wish I could tell everyone who’s in rehab).
Parking – starting out with just something that has always bugged me. It truly drove me bonkers when I had to spend 10 minutes winding through a parking lot, just to get stuck by a car ahead of me waiting for a spot and then eventually find a spot in the back.
I’ve had some problems with parking even with my handicap pass, but 95% of the time, I can pull into the parking lot, go right to the front and get my executive slot. We’re spoiled, but we deserve it.
Skip lines – every now and again, we’ll be able to skip a line. Typically, this doesn’t apply at Starbucks, but in airports – where the worst lines in the world exist – it’s absolutely unparalleled. After traveling almost too much, I have plenty of stories, but I’ll spare you. All I’ll say is that I’ve saved hours of waiting time, and this perk is very enviable when you’re flying international and another added benefit is your entourage gets to tag along and reap the benefits.
I’ve actually been invited to events just so that the group I went with would get to share my benefits with me and sometimes I’ll also be the one to drive the group.
Extra care – people will heed you, unless you’re among a sea of wheelchairs, you’ll most likely stick out like a Goldfinger. When I went to EAA Oshkosh, you would not believe the presidential treatment I got, the parking especially. I got so close to the ground that it was almost unfair.
When I was waiting for the theater to open so I could buy tickets for Phantom of the Opera, the security guard and I made respectful eye contact and he opened the door in front of me first. This was a student rush, where any college students get to grab the misfit, loner seats at a bargain and everyone waits outside the doors in the cold just to rush in and try to get the best low hanging fruit, they open one door at a time. People will also, in general, be most attentive and caring for how they could best help you, be it at a restaurant or the gym.
Moral high ground – this one is an ace up our well fitted sleeves. Only to be employed where it’s appropriate because with great power… We always have this card. The ability to shame someone and take the high road. Usually this is when there’s an ever so slight inconvenience or a major one, if something isn’t working you can almost always win an argument or get something. Of course, this is something that can make you look like an unwiped asshole if you’re not careful.
An example of a time I could’ve made a scene was when I went to a restaurant with my extended family and they sat us at a high table. I simply just ate on my lap or from the table, but it was at chin level. The owner came up and apologized too many times because this of course is normally unacceptable, however it was thanksgiving and they were quite crowded, though I’m not sure they even made much of an effort to find us a new table. In summary, being in a wheelchair gives us the option to take the moral high ground twice as much as the average dude, maybe three times as much.
People are nicer – some people will be rude, but a lot more people are nice. It can make the difference when someone decides to have a nice chat with you. People are more receptive as well, at least in my experience. So, the world seems to smile at you a little more. Just a few days ago (at the time of writing), I was going for a walk along a beach side path, from a pier looking over me and into the Indian ocean, there was this child, a girl about toddler age, or whatever age that kids made comprehensible sentences and she screamed out in excitement, “LOOK a man IN A wheelchair!” It was pure excitement, as if I were Brad Pitt. She said that same sentence many more times, boasting to those around her as if she were Indy and discovered something so mystical, it belongs in a museum. I waved and couldn’t help to laugh a bit at her amazement that she saw a man in a wheelchair, she didn’t even wave back, she just kept telling everyone to look. It was nice.
Able to inspire much easier – anyone can be inspiring if they do something inspirational. How about going to college? Everyone does that, so not really. How about a college with extreme snow and a reputation for being especially difficult? Still, there are lots of students at that college. So how would that person inspire others? Even getting a 4.0 and doing a sport isn’t unheard of, it’s definitely inspiring, but not all that rare anymore.
Being in a wheelchair adds the extra edge to make you an inspiration with almost anything you do, so long as you’re challenging yourself. I was a pretty average college guy. I stood out a little bit and caught the attention of the people that were around me for a while, but I wasn’t entirely prominent. Now, being in a wheelchair, I have the same extreme ambitions, plus some, and I’m suddenly inspirational. I don’t deny it, but for me, I’m just picking up where I left off, and adding some things. But I’m still going for the same things I was initially after. So, if you have the ability to make the world better and inspire someone else to do something great, then you have to. It’s the law. If I can prove to be an inspiration to others when I’m getting into my car during the snow, something that wouldn’t be inspiring if I were walking, then you can definitely inspire others – it’s a great feeling.
Become a unicorn – like I mentioned above, you have the rare opportunity to become a unicorn. Like a black, female astronaut in the 1920’s (I know astronauts weren’t a thing, which makes it all the more impressive). Whatever you do, being in a wheelchair adds the horn to the horse and thus I knight you as a unicorn. Everyone wants to be different. We’re all the same at least in that we all think we’re different, but now we have a true testimonial to our belief.
Scholarships – if you’re in college or will be going to college at some point, you are now able to get scholarships that are wheelchair or handicap specific, which can be a great advantage. I’ve applied to many scholarships and programs that require the applicators to be in a wheelchair, it shrinks the competition, albeit the competition becomes all unicorns.
Uniqueness/pattern interrupt – when I showed up to a formal even, with all the attendees wearing dresses or suits and ties, I wore a button up shirt and my sexy jean jacket. Show up different, be a pattern interrupt. I always imagined myself, as we all do, as the center of a film. For me, whenever I walk into any building, or go anywhere, I see myself as James Bond. In reality, like the Churchill quote, no one was thinking about me at all, they were absorbed in their own self featuring silver screen. Now, no matter what you wear or do, you’re interrupting the pattern just enough that you become, at the least, a supporting character in everyone’s first person plot. It gives you that seasoning, the sugar and spice, the dish at the potluck that was cleaned out first. Some people don’t like attention, but they all want to be special and remembered.
You have a story – a story people want to hear. A peel from the same banana above, when you go somewhere, you have a little mysterious aura around you. You’re in a wheelchair and there’s definitely something that happened. I’ve been working on mastering my story telling, you don’t have to be extreme, all you actually need to do is write out the long, medium and short story of what happened to you and once you have your story sorted out (you’ll stumble over your words if you just go from memory without writing out once), you’ll be able to tell a captivated audience a storythey want to hear, probably an inspiring one.
People wanting your perspective – it depends on who you are, but more likely than not, your opinion is now held a little higher, maybe a lot depending on who you are. You have a new perspective and people are interested in that. This is more conditional that the rest of this list because you have to present yourself as (and actually be) intelligent and astute. For me, when I was working at Kimberly-Clark for an internship, a lot of people wanted to know any recommendations I had for helping them improve and be a disability forward company. I was never good at giving great advice because everything was actually really good, but I was still asked and when people seek out your opinion, you feel and are important. Not many interns were asked the same amount of perspective questions as I was, or at least not of the same nature (I was the only one in a wheelchair, a true unicorn).
Opportunities like crazy – the best for last to end this with a big explosion. Once more for the cheap seats, this post is for anyone in a wheelchair or in any unique situation that seems like a disadvantage and I’m giving examples of how to look at the positive side of life, which makes life all the better.
So, through many opportunities given to me, which I may map out one day, I find myself at a Disability:IN conference. I find myself talking with an especially important woman, who has become a mentor of mine, the CEO of Disability:IN! Because of looking on the positive side, having my story, my ambitions (being a unicorn) and wearing a jean jacket along with many other factors that hindsight can’t even discern, my life took an imperceptible turn for the best. It brought me 10 years into the future. If I weren’t in a wheelchair and never had gotten injured, my ambitions would’ve been close to the same (a little less) and it’s very possible that I would’ve gotten to where I am now in terms of success, measured by my own goals and their progress, but it would’ve taken a lot longer than just 8 months.
Although I love to brag, I hate to be boastful. That doesn’t make sense but it sounds good.
What I mean is that none of this is me just telling you how great my life is, although it literally is, the deeper meaning behind this is that whether you, the reader, have just gotten injured and you’re in dire need for something good to look forward to, or if you (the lovely reader) are going through any obstacle in life, you can look to my experiences and notice that everything I focused on, down to the small stuff such as parking, is all positive. I don’t neglect the negatives, I deal with them sternly, but I don’t let them take over my mind. I choose to focus on what is good in life and I’m giving you the exact things you can likewise focus on (if you’re in a wheelchair).
If my past self, in rehab, could read this passage and realize that being in a wheelchair will give me an extremely favorable advantage, it would’ve helped me out immensely.
The world is grand because it’s yours for the taking.
Immediate actionable items: Write out some of the positive things that are going on in your life as a result of something that may have been an obstacle, failure, or perceivable set back.
Summary: Being in a wheelchair have insane benefits. Focusing on the positive will make everything even more positive. My list of some of the benefits I’ve had along with some examples are: Parking, Skip lines, Extra care, Moral high ground, People are nicer, Ability to inspire, Unicorn, Scholarships, Uniqueness, Story, Perspective, and Insane opportunities.
Overdeliver: When you catch yourself focusing on the negatives, write them down and next to them, write out the benefits and opportunities that can or have come from them. If you can’t think of any, look at the negative and complete the sentence “This is good because ______!”
There are probably more tools and gear that I’ll discover over time, but here are a few great tools and some gear that you can start implementing now.
Tire Pump
Starting off with the issues we face in the tire pumping department. It’s not easy to find a pump to use on wheelchair tires if you’re doing it yourself. Problems: You’ll most likely have to get out of your chair, which isn’t always easy to do. Once you get out of your chair and ready to start pumping up your tires, then comes the issue with actually pumping them up. If you’re not wicked strong or maybe you have trouble using your arms, it’s difficult to actually pump up the tires. I keep my tires pumped up at around 100PSI and it takes some energy to get up to that number. If you do find a tire pump that’s easy to use, it probably isn’t travel friendly. You can see my first tire pump here and the difficulty that comes with it
I found a few variations of tire pumps, some are manual, some aren’t. Some are travel friendly, some aren’t.
2. If you’re skeptical about the electric pump but still want something that you can use without having to break a sweat, then you’ll be best using this sexy tool: Mini Bike Pump with CO2 Inflator
This even comes with a mounting set that, depending on your chair, you could attach to your chair!
3. If you still want to pump your wheels by hand, you’d be defeating the purpose of me showing you cool gear and tools that you can use to mitigate this problem. However, if you must, this hand pump is still a lot more portable than the first tire pump that I bought and it comes with a repair kit!
Now that we solved the issues that arise from having to pump up our tires, whether at home or traveling. Problem: What are we to do if the tire is beyond deflated and actually needs to be changed or patched? It’s hard to take off the wheel and replace the tube, especially if you have limited hand function or aren’t at home. What about decreasing the chance of having to change the tube? This right here is a 2-in-1 gear. Not only is it useful as a tire repair kit, but it doubles as extra storage space!
1. The WOTOW Bike Tyre Repair Kit not only has the tools needed for on the go tire repair, you can fix other small nuances with the multi-tool provided. If you have an inflated seat cushion, the repair kit can also work to patch any holes you might get. If you dont really need the tools – maybe you already have them – then the bag itself can be useful and it’s up to your imagination as to where you can attach the bag.
2. If you want to minimise the chance of getting a flat tire, then you can get the Slime Self-Sealing Smart Tube, of course, the size will differ and you’ll need to check your tires to see what size tube will fit your wheels.
3. If you’d like to have a more advanced tire repair kit that will make the tedious and frustrating process of replacing a tire tube easier, there aren’t many options.
Typically, a tyre repair kit will come with flimsy plastic tools that have bent and broken when I used them.
This is something that I recently stumbled upon and I see huge potential for it, not only in my arsenal of awesome, but in the homes of many people who are in wheelchairs and love to travel and explore against the odds.
The problem we solve here is that if you live in an area known to get a surplus of snow and you plan on going on a trail in the outback the following month, then you’ll have to carry around tyres and a kit along with a resentment for having to change your bike tyres so much.
The solution is presented here and best speaks for itself:
It comes in at a reasonable price considering the benefits.
As a hearty conclusion to this months gear/tools, you’re mind might be busy at work with new ideas and or excitement to use these products to improve your life. It’s worth remembering that wheelchairs are, to some degree, a bike that just got bent and twisted. A lot of bike tools work well for wheelchairs and our tires are basically bike tires with a bar on the side. I look around the cycling community and often adopt some of what they have.
If you haven’t ventured into the possibilities, these products above are just the beginning of how those of us in wheelchairs can be creative by using what exists in new and great ways.
PS, I have plenty of gear/tools to write about, I might post more than just one a month, but we’ll see about that.
In case you’re eager for more cool gear or tools that I’ve uncovered during my internet archaeology, here’s something that you’ll see featured in a future post that’ll be talking about EDC: Beer Bike Keychain
How to find the right vehicle for paraplegics, quadriplegics or anyone in a wheelchair.
Reading time: 8 minutes
When I was in the market for a car, I couldn’t find a list of cars that are good for people in wheelchairs. I now realize why that is as I undertake writing for you something deserving of this title.
Here are the two reasons there isn’t a succinct list, it depends on the individual and nearly any car can be used. The “best car” is relative, there is no absolute best car for everyone.
However, there still needs to be a guide for how to find the best car for paraplegics, quadriplegics, or anyone in a wheelchair.
There are some cars that can be ruled out right away, but not many.
I’ll be using “car” referring to a vehicle of personal transport, including trucks, SUVs , etc.
Finding the best car starts with what you want, the state of your physical condition, and what your values are.
First, we’ll go over some questions you’ll write down and answer for yourself, then we’ll go over your answers and what they mean for you and what you should look at within the confines of what type of cars will work best for you. You can definitely have multiple cars of diverse types if you can’t make up your mind, but whatever modifications you need will have to be added.
Towards the end of this post, I’ll put in my videos where I talk about what to look for in a car and how to transfer into different types of cars to help you visualize and for extra help in finding a car.
When I was searching for a car, I looked at hundreds of cars online and I went to all the dealerships in my area to look at and try out the different cars. I would mostly look at the cars, look at how the doors opened and visualize whether or not it would be a good fit. Some cars I checked out and tried to get into at dealerships didn’t work at all. I could barely get into the car and once I did, there was no way of me getting my chair inside. That car was the Fiat 500x, one which I thought had a good chance of working and luckily, I tried it.
So, lets begin with finding what type of car you’re looking for.
Questions for how to find the right car for you:
Do you know what style car will fit your lifestyle?
A van with space for kids and cargo, a sports car built for speed, an SUV with all wheel drive made for extreme weather with sufficient space, or a truck made for towing, carrying and use of 4×4.
How much do you care about the time it takes to get into the car?
If the car you want took you longer to get in than your second choice, does the time or preference matter more?
Do you care more about style or about convenience?
To what level are you able to disassemble your wheelchair?
How fit are you for lifting your chair and do you have any injuries or weakness of any muscles?
Would you rather stay in your wheelchair or have to get out of it each time?
How much do you want to take apart your wheelchair (if you can)? All the way, partly or not at all?
What are some general features you would like in a car? All wheel drive/4×4, speed, economical, luxury.
What is your budget?
Once you answer all of these, you can begin to break down what these answers mean. Let’s review (coordinating with the bullet numbers above).
If you know the style that will fit your life, then that’s good, you already narrowed down where to look.
When it comes to the time to get into a car, depending on your ability, strength, and modifications, it can take a few seconds or a few minutes. If you know for certain that you want a truck, then it might end up taking a minute or more to get in. Are you okay with that? Imagine you go to get gas, park and get out only to realize you’re on the wrong side and need to get back in, turn around and get back out, all the while, you’re late for a meeting. Would you still want or need a truck enough to merit the time it takes to get in and out?
If you’re willing to change the car type based on how long it takes to get in and out, you’ll find more info for what options there are to minimize the time it takes to get in and you can determine for yourself if that type of car is what you’d want or can afford.
Depending on your physical condition, you’ll have to make some trade-offs based on the minimum of what you need. After that, you could either keep going down the road of modifications and possibly different car types so that it is the least amount of work for you to get in and out, or you can stop at the bare minimum and opt for more style or preferences that might make it harder or a slower progress to get in, but if you value style/features more, it’ll be worth it for your happiness.
What type of wheelchair do you have? Along with that, considering your physical abilities, how easy is it for you to take apart your chair? The ease of taking apart your chair varies with the type of car and modifications you get. I recommend watching my videos to get an idea of what ways a chair can be taken apart for different types of cars. The type of car/modifications you get will determine how much you need to disassemble your chair. If you’re a quadriplegic and you plan on driving alone, then a Bugatti would be out of the question unless you want to leave your chair behind. Consider the space that your chair will take up in the car, that will affect the style car you get.
Not everyone is a bodybuilder, not even most people who say they are. If you have shoulder injuries that affect your ability to take apart your chair and lift it into the car, then that’ll affect the car style. Maybe you just aren’t strong enough to lift your chair in and out multiple times each day. The degree to which you’re willing to take your chair apart will determine the style car you get along with any modifications.
If you had the option to remove the driver’s seat and roll into the car and be in your wheelchair behind the wheel, would you take that option and accept whatever style car and features you got? Removing the driver’s seat so that you can stay in your chair will affect the ability for others to use your car if the situation arises. If you’re a quadriplegic and more or less confined to staying in your chair, getting a van where you can roll in through the trunk may be the only viable option.
If you have a manual wheelchair, there are various levels that you can take it apart. Myself, I only take off the wheels and that’s it, it makes the process faster and requires less work. You might not mind of you had to take off the backrest as well. If you’re driving a smaller, sport car, then you might have to take off everything that can come off – wheels, backrest, cushion.
You can find almost every car style with all wheel drive along with other features. Since we are buying a car, it’s important to consider, within budget, what features you’d like. It’s not always possible to get all of them, but it can sometimes be the tie breaker.
Considering your budget is important (if you have one). Once you’ve answered all the questions above, you’ll be able to find out what type of modifications you’ll need, which are always very expensive, as well as the type of car.
I recommend this process:
Have your top two car types. For me it was a coupe and an SUV.
Find out what type of modifications you’ll need or want (it might not be necessary but could be preferable based on if you value the time getting in).
Will these modifications work with both, one, or none of your top car types?
If yes, then you can begin the process of finding the specific cars that are options.
If no, then find out the type of cars that the modifications will work with and then you’ll be at the step above.
Go to the dealership(s) and try out your top 5-10 options.
If the car option is a modified van that you need to roll into from the trunk, then you can usually try out different types at a nearby location that sells the vans with the modifications.
Choose the car that best aligns with your values.
When it comes to the specifics, here are some things to look for in the car.
For manual wheelchair users that will be taking the chair apart and lifting it inside:
The bigger the door the better – when it opens and the opening itself.
Try to find a car with the seat close to the outside when the door is opened.
Check into how much the seat can adjust – you might need to move it back to bring the chair inside.
The seat shouldn’t be too much lower or above you when you’re in your chair.
If it’s an SUV, test out to see if you can grab the trunk when it’s open and if not, attach a rope or something to help.
If you were to have someone else take the chair apart and put it in the car, how easy would it be? Could they just fit it into the trunk?
If you’re getting a truck that’s high above the ground, how will you get in and how will you bring your chair inside or put it in the truck bed? There are a few types of modifications for each.
For powered wheelchair users:
If you’ll be staying inside your chair, then your options (to my limited knowledge) are not vast. Most likely it will be a van or SUV with a ramp that comes out of the back or side and you’ll roll into the car.
If you’re in a manual wheelchair, here are the different cars that I’ve seen work to act as a guide:
Any van
Some coupes, such as Infinity G35
Subaru Outback & Forester (they have the ideal big door openings)
Chevy Malibu, it’s a sedan but not hard to take the chair apart from within.
Convertibles would be easy to lift the chair into.
Older cars such as the El Camino or El Dorado with the big door openings
Choosing a car holds more weight for those in a wheelchair than it does for others. Once you choose a car, you get the modifications, which are typically bespoke and can’t easily be transferred to another car. So you really only get to make one choice unless your finances are in a very fine spot and you can afford making a mistake purchase of a car.
Getting in an SUV and what to look for in a car
Getting into a truck
Getting into a sedan
Immediate actionable items: If you’re looking for a car, write down your answers to these questions and create a checklist of mandatory and preferred options for cars. They style, the modifications and so on. Then, go out and look for some cars as well as suppliers for modifications.
Summary: The best car for paraplegics, quadriplegics or anyone in a wheelchair doesn’t exist. Cars, though mass produced, are very personal and the best car for someone in a wheelchair won’t be the best for someone in a comparable situation. We go over the basics and in depth questions to be asking yourself when it comes to finding your best car. Overall, SUVs and vans are the most popular, but not all of them will work, it’s important to go and try your top 5 options after going through the checklist we created.
Overdeliver: If you’re in a wheelchair and also have a facebook account, you can join some groups with others that are in a wheelchair and ask them for personal recommendations, though you need to remember that everyone is different and has different values. Don’t blindly accept advice and buy the first car suggested to you. I was told by many people that I need to get a van and I’m happy I didn’t get a van.
If you’re in a wheelchair, or have some injury/disability, no doubt you’re different.
Whenever I’m in a group, either as the designated leader or just assuming the role, I always take notice to those who are a little reclusive and get them involved. When people are shy or feel out of place, they might pull back from the group a little and if no one makes a conscious effort, they will easily be left out. I always (or I like to think I always do) take notice of those more introverted in a group and try and make sure they feel included and give them the hand reaching out or the nudge they need.
I was re-reading Creativity, Inc. by Ed Catmull with Amy Wallace and decided to watch some Pixar shorts. The early ones give me a nostalgic feeling and remind me of when I was a little dude sitting on the ground, eating popcorn and watching a film on one of those huge TVs that use VCR tapes. That baby always gave me the jeebies
You can interpret the moral of this short below however you want, but my main takeaways were of being a leader and being different – disability or otherwise.
Here’s the short and after watching, I have a few things to point out that are worth making a mental or physical note of.
Pixar short – Purl
You’ll notice that Purl doesn’t quite fit in, though her skills are what got her the job (through the resume). The first lesson here is that no matter who you are, it’s what you can do to help and the value you give that matters. Like the quadriplegic I mentioned in this post (under the Generous Luck section), he was eager to do more and made it known to me. I was worried that he would overlook his opportunity to use his voice, words, and mind as a tool to develop and master a skill that would render everything else unimportant.
You’ll also notice that Purl gets ignored and left out. It’s not always appropriate to force yourself into situations, but without a sponsor – someone to bring you into the group – it can be hard to fit in and join the group.
Purl subsequently changes herself to fit in and when someone like her past self comes in, she realizes how she betrayed who she truly is.
Don’t change yourself to fit in. When it comes to the work life or college/school, all you need is to find one good or great friend and they will help you, or at the least, you can both take on the world together.
If you’re the only one, wherever you are, with a disability then you’ll definitely feel alone. Stay true to who you are, and stay positive. Soon enough, people will recognize that you can’t be affected by external things (if you build up that skill) and will respect you for it. Getting discouraged is possible, but there is always at least one person that you can confide in. The person who hired you or the leader of where you are. Leaders – good ones – are inclusive and understanding, they’re a leader because first, people were able to go to them and see them as someone that can help.
If you are being left out because of your disability, face it head on. You could even call you own meeting to set people straight if you’re that bold, or you could prove yourself through your work, or just stay persistent and maybe your own Lacey will join the workplace and then you can both start tackling the issue.
I began to think of this as analogous to disability in the workplace when, at the end, you’ll notice that everyone became better because of acceptance. You’ll notice that people had colored shirts on, the work was flowing, and there were all types of different characters getting along swimmingly.
Another lesson in this short is that if you have the opportunity to reach out to someone and include them, do it. You’ll make the world better for it. Don’t let social pressure pin you down and freeze you. All it takes is you and someone who you can help, even if that person is yourself.
When I worked at Kimberly-Clark, I never had a problem with being included. Everyone was beyond nice and it felt how the end of the short looked, inclusive and supportive. Although I was the only one in a wheelchair, I didn’t feel isolated because of it.
I was able to pretty much forget about it – a feeling I have often when I’m with the right people.
I was brought nearly to tears by the end of this short. It doesn’t take much for me.
This is a rather sporadic post, so I don’t have reading time or the typical summary and action items. I do have an overdeliver though.
Overdeliver: If you’re looking for places that are disability friendly, look at this website here. There are some companies that are accessibly and inclusive and aren’t on this list, so if you’re looking at a specific company, you can look at the resources on the aforementioned site and ask some questions.
When it comes to choosing a catheter, it ranks among the top five biggest decisions concerning your new life.
Unlike a wheelchair, you can make a decision and change it as many times as you want, whenever you want, so long as you’re willing to go through the niceties. There are about 5 categories to consider when you’re making this decision. Similar to my other posts, we’ll go for a ride with the Cosmo of Rehab Past and look at my experiences, mistakes, and logic. Towards the end, there will be a questionnaire to help you decide what style catheter might suit you, or rather, what types to avoid.
Before we begin, there is a paradox that merits some consideration. Experience is a teacher that cannot be replaced, but the time spent on the experiences that can be taught is time wasted.
For some of what I preach, the written word has a limited impact, spoken word alike. Personally, I don’t like to take advice in the realm of wheelchairs. Many times I’ve been misguided by a pungent mixture of naivete and trust that the guide knew more about me than me. Like Charlie Munger, I have many mental models that I use to judge whether or not to accept and act on advice. All I can say is that a lot of what I talk about, categorically, regards important endeavors. Be skeptical, but don’t neglect the weight of how helpful my experiences can be in guiding yours to a better place. Instead of paving your path, I try to draw the borders in which you can pave your own path and give you some best practices for paving an effective path along with some steps to consider taking.
It’s good to remember this is my experience as a man, the general guidelines for choosing a catheter can apply to women, but my experience might be far from the female equivalent.
Fade in: rehab. I just arrived from the hospital and learned how to cath firsthand. It’s a tedious process. It never occurred to me that it would be different, I guess I didn’t think about the future of catheters too much, no one gave me any inclination that I’d be using different catheters until the last few days of rehab. It’s a flat package, sterile, about the size of a tablet. One side is clear plastic and the other is like wax paper. The contents of the package are medical gloves, a piece of soft paper – the type they lay on your chest at the dentist, a sauce packet of medical lubricant, another sauce packet with sterilizing swabs, and a catheter. The catheter has a bag attached to it with measuring lines if you keep track and the tube leading into the bag has a plastic cover over it. At the end of the tube, or the front, there is a little blue nozzle. The process is methodical, almost ritualistic. The point of the extra precautions – the gloves and sterile pad – is to avoid a UTI. Especially in rehab, they take every measure to make sure you’re safe and healthy so you can focus on recovery.
First, you wash your hands, properly expose yourself, open the package, then you put on the gloves making sure not to touch anything because the gloves are sterile and if you touch anything other than the sterile contents, you’re getting ten minutes in the corner and give me your phone too. After the gloves are on, you grab the paper cloth and lay it out on your exposed lap, grab the sterilizing swabs and use them to clean yourself off, proceed to grab the catheter, take the cap off the nozzle, take the lubricant packet, put some lubricant on the nozzle and the rest is medical.
After you’re done, you empty the warm contents into the toilet and then throw out everything else. It takes a while and there’s no chance being in a hurry will help. In rehab, we were on a schedule to cath every couple hours and were expected to deliver 200 – 400 mL.
Flash forward, soon before I leave rehab. My occupational therapist and I are going through a document and looking at different types of catheters and what options I have. She brings me a few samples to try and see which ones I like. This was the first time I had to choose a catheter and I really didn’t know what mental models to be using and how to judge what type of catheter will be good for me. Before I made my decision, I had talked with someone who came into the rehab facility to answer some questions of mine. He told me what catheter he used and that’s the one I chose. I made a big mistake. It didn’t work out for me at all. It was my fault to take advice so readily. Luckily, I knew what other types of catheters there were because my OT and I had talked about them and I tried them.
Myself, I use intermittent catheters, though there are a few different types of catheters you may use depending on the situation and need.
Intermittent catheters are one-time, short term catheters.
External catheters are ones that don’t go in but go over. Used in a rain collector fashion.
Long term catheters are, well, long term. It could be all day or for a week, whichever your doctor advises and what works for you.
I will be referencing a specific brand – Hollister – so that we can stay in one place while we talk about the different types and what you should consider.
The first catheter that I used and subsequently stopped was one without a bag attached. It was just the tube and the tube didn’t have any covering over it (there is a version with a covering over it). It had a little slide bar on the tube that I used to grab the tube without touching it.
The first catheter I used
The issues I had with it was that it took both of my hands to use the catheter, but once I got it to where it needed to be, I would also need to hold something at the end, like a bottle or container, to collect and I didn’t have much tube left to properly aim, or ease of holding a container.
Along with that, the package was the shape of a ruler but a fair bit longer, this made packing it into a backpack difficult, I didn’t want to bend it (I don’t think I was supposed to). Other than the length, it was pretty flat and packable so, if you travel with a duffel bag or a larger bag, then this would work well for you.
When I was done cathing, I had to throw it away, and it didn’t fit nicely into any of my trash cans. I tried to find new ways to use the catheter that would work better. Instead of using a container, I tried using an extra tube and even a mini aqueduct. I had a plastic tube that I put the end of the tube into so that I would extend the catheter length and then the attached tube would be long enough to go into the toilet. The aqueduct was similar, except it wasn’t pliable and just acted as a ramp leading into the toilet. The problem with these solutions is that I need a toilet, if I’m on an airplane or not able to get close to a toilet, then I’m back to the container.
I realized that I needed a bag attached to the catheter. I knew exactly what I wanted, in fact I already had a few. The process for catheters at home had a great time reduction. It went from taking every precaution to kissing the edge of the danger zone. All I did was open the catheter, make sure not to touch the tube, which was actually hard because this was an open tube, and after the pool was drained, I threw out the catheter.
The new catheter I got was supremely compact and much more fitting for my lifestyle. Not the size of a tablet, not the size of a 2 foot ruler, it’s the size of a table coaster. If I fold it in half, it’s the size of my palm, but considerably thick.
This means I can fit it into my pocket and if I’m wearing a jacket, I could have one or two in each pocket and no one would be wiser. It still has the same length tube but is curled up (and meant to be) along with a bag attached as well as a cover on the tube. The cover on the tube means that I can grab the tube and use it to help me use the catheter.
The catheter style I have now, with the bag attached, has been very useful for when I’m on an airplane. In the air, as I’ve been plenty of times, you have to cover up when you cath, which means you’re literally in the dark.
Trying to cath in the darkness of cover from a jacket, without touching the tube and catching it all in a container while on an airborne, turbulent prone chair house is a mission of impossible heights. A mission I never had to attempt because of my quick transition to my pocket friendly catheter.
When you’re choosing a catheter, consider what matters more to you:
Environmental sustainability or Convenience
Extra safety precautions or Minimalism
Travel friendly or Cost friendly
You can compare any of these to any other.
Here are some examples of features/questions you may want to consider and what they mean:
Does it come lubricated? – if you don’t want to carry a packet of lubricant with you, then get pre-lubricated. It depends on if you care more about the convenience or if it’s cheaper to get a catheter that isn’t lubricated.
Is the tube covered? – this is about safety of having an exposed tube that could lead to a higher chance of a UTI, it’s more environmentally sustainable if there isn’t a cover (less plastic use) and it might be cheaper as well. Having the cover allows you to touch the tube to use the catheter.
What else comes with it? – you can get packs of catheters that come with gloves and sterilizing swabs, but do you care more about being very cautious or about environmentally sustainable as well as cost and compatibility? If it just comes with the tube or a tube with an attached bag, that’s about as little as you can get.
How compact is it? – look into the shape/size of the packet the catheter comes in. Can you imagine using a small backpack when you go out in town and brining this catheter with you? Think about how often you’ll be travelling or venturing out and if compatibility will matter, if you’re more of a stay at home or work person, then consider how easily the package and catheter can be thrown out. (the long tube didn’t fit well in my trash can).
How long does it last? – Some catheters have expiration dates on them, the lubricant might dry out and so on. The expiration date might matter because if you buy in bulk for travelling, then you’ll most likely buy 3 or 4 months supply at once and you need to know that the catheters won’t expire towards the end.
Now you should be ready to throw wind to the caution and rationally select a catheter. One thing to note is the question that precedes all of the guidance above is, what do you need? Your doctor, nurse or therapist should be able to tell you what planet your voyaging – if you’ll be using intermittent catheters or otherwise, that will define which categories you search through and subsequently use the above guidance to help.
Immediate action items: If you have yet to leave rehab, start asking about catheters and consider these parameters when you choose one. If you’re out of rehab, can your catheter better align with who you are?
Summary: When we choose a catheter, there are many aspects that we aren’t even aware of, which can lead to mistakes. Herein lies some helpful guidelines for what to consider when choosing a catheter. There isn’t a best catheter for everyone, there is only the best catheter for you, individually.
Overdeliver: More likely than not, you can easily get a sample of the catheters you’re considering. Sometimes you can request a sample directly from the manufacturers website or send an email to a representative. This way, you can try out many types and make a better decision along with expanding your knowledge of what options you have.
If you’re in rehab, or out, or a living person, you have thoughts.
Focusing on people in rehab recovering from a spinal cord injury, this is the story of how I never had a bad day in rehab and how I never got depressed. Every day in rehab, I was happy, I had fun and I grew as a person and in my abilities.
There are a lot of things you can do to make sure you’re successful in rehab, we’ll eventually talk about all of them, but today, we’ll be covering some ways of thinking that can help us not only succeed but prosper.
When it comes to mentalities, sometimes it can help to have some guidance on how to think. You feel alone, I did at least. You don’t know what to think and you can only hope that you’re right, but what models do you have? In the business world, we can always use Richard Branson as a model but there isn’t any amazing mythical man to look to, not for stuff like this. This is personal and it’s different for everyone.
That being said, I’ll talk about 3 mentalities that I found to help me and others when going through rehab or a tough time.
You can take the bits that resonate and forget the rest. Because I always say that I’m honest, here’s a little personal story. When I watched the notebook for the first time, I cried. I also cried the second time I watched it. I also cry when I see an act of valor, I cry at almost every superhero movie. I cry when I read books, I mostly read biographies and most of them are about people in the past. I’m a cryer, but I never cried over my injury. Not once. Regardless of that, I’m usually quick to tears. I typically own up to any of my traits – the good and bad – but when it comes to crying, I always tried to hide it or suppress it. This was because I had no model. When it comes to human psychology, we always need some form of validation for our actions. Meaning that sometimes all it takes is to see that someone else is going through something similar and then we’ll feel good about following the path paved by our hearts. The crying validation came when I was reading the biography of Winston Churchill, he was notorious for crying, and now I don’t feel so repressive about crying.
I hope that these 3 mentalities will give you some guidance for overcoming any obstacle that comes your way.
1. The Push-Door Mentality
It begins with what I call the “push-door mentality”. It’s about acceptance. Subconsciously, I immediately accepted what happened when I got injured and moved past it, that’s how I was able to do everything I did. Some people don’t accept their injury for years, and those years get drowned in self-pity. I don’t know about you, but I never had time to feel sorry for myself, I only had time to achieve. I do actually feel sorry for myself sometimes, but not for more than 5 minutes before I catch myself.
You may think “why did this happen to me?!” I don’t have an answer, you might be religious, but whatever your beliefs are, there is a reason. It may not be the one that you’re looking for, but there is a definitive reason. You had your injury due to something happening (that’s how things happen). Nothing is completely predictable, but if your hindsight is decent, then you’ll be able to analyze the situation objectively.
For me, I know exactly why this happened, I was a risk-taker, I loved adrenaline and I wanted to always try something slightly or extremely dangerous. Usually, I take calculated risks, this one wasn’t as calculated. When I was skiing, I jumped off a ramp, going very fast, and lost control. Then, as I hit the ground, a few things happened to my vertebrae that shouldn’t, they hit my spinal cord and it got bruised. We could even go as far as talking about the physics of the force impacting my body and get really detailed about why it happened.
Whether or not a strictly analytical approach helps, what I’m saying is that unless you’re a historian, you don’t need to waste any of your precious time pondering in despair about why this happened to you. Trust that it’ll all work out, and it will.
I’ve always imagined it like this: you want to go through a door, this door is the entrance to heaven, to Atlantis, or anything majestic enough to give you a rush of endorphins. The door had a handle on it because it’s a door and that’s how most of them are. Nothing else is on the door, however. You pull on the door as hard as you can. You’re very strong and yet, the door is not giving way. You pull some more, you think about why you can’t open this door. You rationalize like anybody else that maybe it just isn’t for you, maybe the door is locked, you’re sure that the door should pull open. No doubt that the door is a pull. You curse every deity and then pout in frustration. The PULL door is not pulling open. Well, it’s actually a push door. Until you accept that the door is a push door, you won’t be able to get through. All you have to do is accept the fact that the door is a push. Once you get in, who cares about how the door opened?
That’s the best Cosmo fable I have about acceptance (for now). The point is that there is a life full of opportunity, happiness, success and love waiting for you.
You’ll be blind to this potential life if all you think about is the past and never accept what happened. Because all humans have to rationalize everything, you can tell yourself whatever you please, you can say that it had to be you. In the movie of our lives, we’re the main character and this might be poetic justice or just something to make the story interesting, but the last thing that makes a life interesting is not accepting and subsequently doing nothing and living in despair.
This is something that happened, that reality can’t be refuted, you can always think about what you wish you did different, but regret doesn’t mend a broken jar. You have control over how you react. Every hero has obstacles, in the first Iron Man, Tony Stark didn’t just accept that he was captured in a cave. He did accept that he has a cool energy circle in his chest and he used that injury to his advantage to become Iron Man. This is your life, you can sulk about what happened and question it, or you can accept it, and once you do, you become bigger than it and you can move on to greater things.
A man is about as big as the things that make him angry
Winston Churchill
A quote by Churchill that I live by is “A man is about as big as the things that make him angry”
If you let little things bother you, you shrink down to that size. Sometimes I let little things bother me, but then I see this quote and remember that I’m only worthy of big problems. Once you accept your injury, you become bigger than it and once you do that, you can focus on your motion picture life, make it a story about success and overcoming obstacles, win a Grammy.
2. The Generous-Luck Mentality
Following the push-door mentality, we get to the greedy-guilt dilemma. Has anyone ever told you that you’re lucky it wasn’t worse? And they kind of make you feel bad for thinking you’d be lucky if it were just a little bit better. Do you want more and feel bad about it because some people are worse and wish they were like you? or that you should be happy with what you have and it’s bad to want more?
All this is utter bullshit. Sorry, that’s actually unfair to bull’s shit. Just writing that upset me. Never think like that.
People who tell you that you’re lucky to not be worse, and we’ve all been that person in some way, don’t know what else to say. They’re just trying to be helpful, but don’t believe it. No shit, it totally could’ve been worse, but if we’re playing the “you’re lucky, it could’ve been worse” game, then we may as well talk about how much luckier we could’ve been and look to people who ended up better than us. Comparison is the thief of joy. Don’t ever feel bad for wanting more. If no one ever wanted more, we’d all be satisfied with fire being the newest invention and stop there, long before the wheel and the written word. You need to want more. And don’t feel bad about it. Tell the world, run it up the flagpole and see who salutes. The only problem with wanting more is that you can get lost in those thoughts. Thinking too much about the “more” that you want, and don’t have, can put you in a slump.
Here’s the story. When I was in rehab I was always doing something crazy. One day, they brought in a mountain bike for me to try out and see if it peaked my interest. Naturally, I took it up some stairs. It is a mountain bike after all. There was a guy in rehab, really cool guy, he was also quadriplegic. While I was going up the stairs and had pretty much everyone stopping to watch, I was the first one to do this and my therapist was probably having heart palpitations, possibly because my hair looked great. My friend wasn’t able to turn around to watch me, but he really wanted to. We talked for a little bit on my last day as I was saying goodbye to everyone and he was telling me how much I inspired him to push harder each day and that he would never give up. I was happy to hear that, he also told me that he really can’t wait to gain more control so that he can be more independent. Of course, I encourage this, I want to inspire people so that they are motivated to strive for more, however, I wanted to make sure that while he was going down the road to recovery, he stopped for gas and took the time to observe the beautiful scenery called life. I told him that even if he doesn’t get much control back, he could still go into politics, all they do is talk, really.
Picture and video of me going up stairs in a mountain bike at rehab.
The point being that although we do need to focus on the future and always strive for more, if you only plan for what your life will be like in 10 years, you’ll miss each day. That man had control over his most important asset, his mind. He could still hear, see, talk and think (and smell). He could become a writer, or even a programmer with today’s technology. Don’t overlook today’s possibilities in lieu of the future.
It is okay to want more, but don’t become so focused on it that you forget about today and never feel bad for wanting more. Always want more and never feel bad about it, but you won’t get anywhere unless you work with today, master the day and then let it build the foundations for the future you want. It’s becoming trite at this point, but I want to emphasize that you should NOT feel guilty for wanting more. You don’t have to believe you were lucky it wasn’t worse, because it also could’ve been better. Be greedy with your ambitions, just don’t get so caught up in them that you miss the moment
3. The Steamroller Mentality
Once you accept and stop feeling bad about wanting more, there is another mentality that we can address. It’s called the “steamroller mentality” it’s about accepting a challenge and taking the next step or sometimes skipping steps.
When you’re in rehab, every day is a chance to improve and get closer to independence. The mentality I had was to make extreme progress like never before. In the rehab world, I was told about a term that I would have my sights locked in on for the next 4 weeks. Mod-i. Modified independence, which is fancy talk for being able to live on your own. On my second day in rehab, I had my first physical therapy session. One of the first things I said was that I was going to reach mod-i in three days. “I’m a steamroller baby” – Elvis.
I was absolutely determined, I knew what I was after and I didn’t waste any time. I requested for more hours of therapy each day and I woke up ready to have a great day. Not only was I getting stronger, I was gaining my independence, overcoming new challenges and I was surrounded by amazing people who all supported me and helped me achieve more. I would banter with everyone, post about my day on instagram and get even more support from there. Also, everyone was attractive and who doesn’t enjoy being around beautiful minds and faces all day?
I digress, sometimes often, back to the story. When I had my first therapy session, the first thing that I had to learn was transferring. The therapist had this really long cutting board, which they call a transfer board but I’m not convinced, this cutting board was supposed to be used as a little mediary for getting me from the bed to my chair. I asked “what would come after this?” “is this the end of the line or is there something else that I would do after I get good at using this cutting board?” The answer was that I would eventually move to transferring without a cutting board. I told the therapist that I didn’t want to use the cutting board. And that was the last time I saw it.
Here’s the logic (or whatever you deem it): I don’t want to waste time getting good at something redundant. I’d rather spend that time learning the crescendo, the advanced material.
This logic doesn’t apply to everything, but for everything I did, I questioned it, not in a condescending manner, but because I wanted to understand if it laid a necessary foundation for something else or if I could skip it. Even if I couldn’t skip it, I wanted to know what was next. I would always ask something like “assuming I master this today, what would we do tomorrow?”
This is one of those mentalities that keeps you from just taking things as they come. Taking control over what you’re doing, learning what it leads to and challenging yourself. There were times that I asked to try the coda, tried, failed, and had to revert to a lesser practice, but at least I tried and knew that I needed to build up to it. I’d rather be sure that I can’t do something the hard way.
And that’s it. Those three mentalities. The push-door, the greedy-guilt, and the steamroller mentality. They’ve helped me and they pave the road for an even more fortitudinous mind.
Here’s a cool picture:
Cosmo with a spark scooter with the MTU Husky statue in the back
Immediate action items: Write down how you could implement these mentalities into your life and begin to act with these mentalities as soon as you identified where they fit into your beautiful life.
Summary: The three mentalities that helped me overcome and prosper: acceptance, not feeling guilty for wanting more and always asking for more challenges.
Overdeliver: Another thing that helped me a lot was support from friends and family. My mom was with me the whole time and I had a visitor (friend/family) every weekend. I also listened to music all the time. If you find that you have too much time to think and you begin to get existential, try listening to podcasts, calling friends or taking up some art (poetry, drawing, painting, writing, reading).
Featured photo is my brother, mom and me just a few weeks after I got my new wheelchair
Getting your own wheelchair. It’s very important and can be done very wrong if you haven’t done it before. I was almost entirely on my own when it came to getting my wheelchair. I wish I knew more.
This is everything you need to know about getting your first wheelchair. There might be some details that are different for each person, so be sure to ask a lot of questions as well.
I’ll be giving you a list of questions to ask along with some information about what to do or expect when you get your wheelchair.
We’re going to go through my experience as I remember it and I’ll tell you what I did and what you should do, whether it be the same or different. This information is aimed mostly towards those in rehab.
During rehab, I didn’t know anything about wheelchairs. I could’ve asked or looked some things up, but I had different priorities and it never occurred to me to ask.
One day, as I was nearing my departure from rehab, I was given a week’s notice for my wheelchair appointment. This is where I would get my bespoke chair with anything I wanted.
It was scheduled for an hour. Much, much too short of time. As soon as you can, ask about your wheelchair appointment and have it be AT LEAST 2 hours. I went over my one hour slot and still needed more time. As a result, my chair is pretty good, but far from what I wanted and what I need.
When you’re in rehab, or at least when I was, a lot of the details are figured out for you. I have insurance, so the insurance company worked with my therapists and the rehab facility to find out what wheelchair supplier I would be working with.
A wheelchair supplier is the company that you work with when you get your wheelchairs. They are similar to a market. You go to a store (the wheelchair supplier) and you want to get something (wheels), you look at their selection and notice that it’s not infinite and only has a select number of brands.
Ask to be notified when the wheelchair supply company is selected. For me, this was a cross between who the insurance company would work with and who the rehab facility worked with.
Once you’re notified of the supply company, IMMEDIATELY ask for a catalog!
This was my biggest mistake. Not even a mistake, it took me over a year to discover that catalogs even existed. Honestly, this infuriates me even today because I could’ve been much more informed and subsequently gotten a better wheelchair.
Because this catalog is coming from your new wheelchair supplier, this will be all of what they can supply (sounds about right). You can talk to your nurses, friends, family, therapists or anyone in rehab about what they think of different parts for your chair. This is both for style and usefulness.
When it comes to deciding what things you want on your wheelchair, it gets down to what type of person you are.
For me, I’m a minimalist and do almost everything on my own. So, I didn’t get push handles or arm rests. I made sure to get a seat belt, though. I also have a carbon fiber wheelchair, so it’s lightweight, which makes doing all the crazy things a little easier.
Look at different parts and ask about their purpose and ways it could benefit you, or hold you back.
Do your research!
The one bit of advice I got from someone before my wheelchair appointment was to request that they make it slim because they typically make the chair a fair bit wider than your hip measurement.
When I went in to my wheelchair appointment, they had a few tester wheelchairs based on my measurements taken previously in rehab. In rehab, it’s kind of like a car rental, you get measured and they go to the used car lot and try to find the best fit they have for you. I think I went through 2, maybe 4, different chairs.
We spent a lot of time talking about wheelchairs because I actually knew nothing. Everything they said, I questioned. You should do the same.
I’ll include questions at the end along with a description of the questions’ purpose.
Anyway, during the wheelchair appointment, remember that these people are here to help you, but you have to help yourself first and be informed on what you want. I made the mistake of telling them “I just want the best.” That’s a lofty request, they don’t know anything about me other than the few things they learned in the first 45 minutes of talking.
In order to help yourself, you need to really think about what you’ll be doing. It’s hard to know the future, but for me, I’m extremely adventurous and I was already planning a trip to Germany just a month or so after I got out of rehab. I knew I wanted it to be lightweight, extremely durable and minimal. It will help if you’ve gone through catalogs.
When I was getting measured, I told them to make the wheelchair slim. Spoiler: they didn’t.
Something I should’ve done is gotten more involved, look at the measurements they’re taking of your body and then look at what sizes they’re writing down for the chair to be. Ask them how much space they’re adding to either side of your hips. This space can prove to be useful, if it’s a rainy day, I can fit an umbrella in between my hip and the chair. However, with this extra width, I struggle to fit through certain doors and maneuver in tight spaces. As an adventurer, I value my mobility and ability to access more places more than I value having extra space to hold things.
Really make sure that you’re getting involved in the measurements they’re taking. Ask them to show you what it might look like. If they plan on ordering a back rest at a certain height, have them take a measuring tape and show you on your body where that is.
Be intrusive. This is a one time thing. You get one chance to do it right. Once you get your chair, if you want something changed, it’s a near impossible task to get it changed (in my experience).
I was told that most insurance companies view the lifetime of a chair to be around 5 years. Meaning that, on average, my wheelchair supplier has seen insurance companies approve of people getting a new chair once every 5 years.
The same chair for 5 years. Let that resonate. Think of how much you’ve changed in the past 5 years.
This chair will be with you for 5 years, you really need to make sure you do this right. No pressure.
Over the next 5 years, you will do more, probably more than you can begin to imagine, if you did know, then you’d be psychic, and I know that you aren’t (because I’m psychic). So, even if you haven’t learned to ascend stairs or do tricks, you will and you need to be ready.
Make sure to get your chair with skills in mind, skills you have now and skills you’ll have in 5 years.
Imagine you’re a kid. You go to the store and you get to buy 1 shirt. You’ll be wearing this shirt for the next 5 years. You’ll get bigger, your style will change and you want it to survive 5 years of use. Every. Single. Day. For. 5. Years.
You want to buy a big shirt, a shirt that you can grow into, not out of.
Don’t get a wheelchair only to have it hold you back from living your life the way you want. Don’t get a wheelchair for yourself now, get a wheelchair for yourself in 5 years. On Team Cosmo, we hate being stagnant. We love trying new things, exploring and being adventurous. If you want to go do something, your wheelchair should be your last concern. When I want to go on an adventure, I don’t want my first thought to be “I probably can’t do this because my wheelchair isn’t made for this, I wish I got one that was built better.”
While I was getting my wheelchair, we had to be cunning. In the room was the representative from the wheelchair supplier, a therapist who worked at the rehab facility, and me. We all talked and laughed pretty much the whole time. We all worked together on finding me the best chair possible. It comes down to what you know or what you find out by asking. I asked a lot of questions but not enough and not all the right ones, my limited knowledge limited what wheelchair I got.
While in the room, with every part of the chair, it needed to be medically necessary. For insurance purposes, since insurance was paying, every time we talked about what I wanted for the chair, we had to think of how it would be medically necessary. This is where the cunning part comes in. In many ways, the insurance company is the enemy, maybe not so much a villain but rather extremely stingy for its own interest, so there will be many battles.
For most of the chair, medical necessity wasn’t even debatable. Things such as my body measurements that dictate the dimensions of the chair. But for things such as carbon fiber, is it truly medically necessary?
This is where we get into the area of making great arguments, something I’m particularly keen on. Make sure to work with everyone you’re with, get an attorney if you need to, and push for getting what you want, because it will ultimately make your life better.
My chair is K5. A quick lesson in lingo: wheelchairs are classified by K-numbers or K-levels. They basically define what the chair is made for. It tells you about the weight class, durability and so on. Similar to how Apple has the iMac or the iMac Pro or Macbook Air or Macbook Pro Air. Those names tell you what performance you can expect from the product.
So, while I was in the room, we were talking about what options I have and the therapist was filling out a form for the insurance company. I never saw it, but I know that it documented every part of the wheelchair that I was getting, all the specifications and the reasons that these were medically necessary. For carbon fiber, well, I have my own car that I get in and out of and I do a lot of traveling. I’ll surely injure my shoulder if my chair is made out of anything heavier than the lightest material available. I also like to test the limits, which means there is always a chance that my wheelchair could break in some way. Even if something is just cool, that right there is mental health and having more self-confidence if you’re chair was to be a certain color. For most things on a wheelchair, there is a viable reason for getting it, you just have to find out why.
Once our allotted time had passed and the appointment was nearing its end, the form was sent to the insurance company.
In my experience and I’ve been told this is the standard, the insurance company will take many months to review and approve or deny specific parts of your chair. Some employee at the company will review each part that you’re ordering and approve or deny it, on the grounds that they want to. This is where you need to hold your ground. It could end up taking a year, a miserable year, but don’t just give in. If they reject one of your proposals, fight it and make sure you get what you need and want. Everyone is on your side except the insurance company, we all want you to succeed and have the chair you want, but damn does it get expensive, and that’s why we’ve been paying for insurance our whole lives, right?
Once the insurance company confirms all the parts of your chair, the wheelchair company will order them, which could take about a month for all the parts to ship. Remember, this will probably be a hybrid chair, with different brands for a lot of the parts, so they’re coming from different places at different production rates.
Once all the parts of your grandiose chair are delivered, they only take a few hours (I was told between 2 and 4) to be pieced together.
Then, the hardest part comes, getting your wheelchair. Because this is soon after you got out of rehab, there’s a high chance you aren’t driving yet. It took me 4 or 5 months to be able to drive (it only took me a few hours to relearn, but the formalities take a long time), but that’s another post for another time.
For me, circumstances couldn’t be more against me. I was at college, I couldn’t drive, and I was taking classes. All my friends were also taking classes, most of them busy everyday. I was also about a 6 hour drive from rehab, which is where I needed to go to get my new chair. On top of that, they were only open during the weekdays (this is even worse if you’re working a full time job) between certain hours.
Because of this, it took nearly a month from when I could’ve had my wheelchair to when I actually got it. This is a problem I encourage you to talk about towards the end of your wheelchair appointment. For me, the wheelchair appointment was the first and last time I saw the representative and discussed my wheelchair until I went and got it. So, if your experience is anything like mine, you have one chance to meet in person and talk about this before it’s too late.
Discussing what will be done when the wheelchair is ready for you and figuring out where you can go. The company that supplied my wheelchair has locations (they call them branches) all around the US, it’s worth asking if you can pick up your chair in a location closer to where you’ll be. Some people travel across the country to go to certain rehab facilities, so having to go back isn’t easy, especially so early on.
In my case, I had flown home and back to college and then gone to Germany and back, all while I had my loaner wheelchair (4 flights total). Loaner wheelchair is the name for the intermediary chair you’re given when you leave rehab and before you get your own chair.
With my loaner chair in Germany
After Germany, I finally had my wheelchair appointment and then I had to find someone to drive me 6 hours to Chicago for a 1 hour meetings and then 6 hours back.
After many inquiries, I found a friend who could drive me to Chicago on a weekday. I had my car up at college with me, so we drove that, leaving later that day, finding our hotel, which was very hidden, then waking up early, going to the appointment and then leaving right after to get back for class.
We were on a very tight schedule and I put my friend through a lot.
There were many times that the restrictions set by others on the things I needed to do carried over to not only inconvenience me, but also my friends who were still gracious enough to help me regardless. It’s extremely important to have friends that are willing to help you in this way. They’re the only reason I am where I am, without them I would’ve had to wait months or even years just to get my drivers license (for using hand controls).
When I finally got back to rehab and went into the room where I got my chair, I was stunned. Almost frozen, as if my mind was so occupied with comprehending the shock that I had no room left for any motor functions. The backrest was HUGE. It was much bigger than the one on the loaner chair I had and it was way too big for me, medically and comfortably. Because I have full core and lower back control, I don’t actually need a backrest other than to keep me from sliding off the back of the chair.
In the room where I first saw my new wheelchair
A little detective Cosmo tip: when you look at someone in a wheelchair, the height of the backrest can tell you their level of injury or how much control they have. If the backrest is mid/upper back, they probably don’t have much core control and the top of the backrest is about where the injury level is. This is a rough estimate but you can make your prediction, ask the person and then see how right/wrong you were.
The chair was also much wider than I wanted. I actually had them measure the base of the new chair against the loaner chair and they were the same width. I was not happy about that. When I had gone home, in the loaner, I wasn’t able to get through many of the doors in my own house, the chair was too wide for me and for the doors.
I do like the chair that I have and I’m grateful for it, but this is an account of my experience when I first got my chair, and because I’m honest, I’m telling you how I felt and the problems I had so you can avoid them.
It also looked pretty sleek. But I have to admit, the imperfections casted a shadow on my excitement. There weren’t many, but they were the type that made all the important difference.
My biggest mistake, and I urge you not to fall prey to this all too common psychological bias, was that I accepted my chair anyway.
I regret few things, most of them involve me not speaking up. I was caught up in the moment, tired from being in the car all day and, on some level, probably just wanted to get out of there because I had already put my friend through enough. I remember signing some papers confirming that I’m taking the chair. I don’t remember what they were exactly, but I think it’s safe to assume they were saying that I agree to take the chair as it is and confirm my approval.
Do not do that unless the chair is exactly how you want it. I should’ve told them that I wouldn’t take the chair until the changes were made. I didn’t. And now, as I’m writing this over a year later, I still have these imperfections on my chair. Of course, I’m still alive and I’ve made it this far, so it can’t be all that bad, right? Sure, but it’s possible that it could’ve been even better. I also could’ve taken the time to get these issues fixed, but I didn’t because of my values.
Stay firm on what you want and if it doesn’t meet the standards of what you want/need, don’t settle. Team Cosmo doesn’t settle. I’ve experienced it, it’s not fun and now I’m here to tell you, so you can avoid making these mistakes.
Well, that’s my story and now, as promised, here are the questions to ask at each stage.
When you talk to therapists from start to finish
In the beginning, ask them to teach you about every part of your wheelchair. What the parts are called and what purpose they have.
Ask about some common upkeep that you’ll need to do.
Ask to be shown how to address common or even uncommon problems. Ask if you can take a video for personal use or take notes.
Ask if they have any other types of wheelchairs or parts that you can look at.
Ask how soon they can set up a wheelchair appointment. Having one where you just talk and learn/ask questions is valuable and will make the second appointment (the one where you actually order the chair) go faster.
When you find out who your supplier will be
Ask for a catalog from the company for all their wheelchairs and parts (that apply to you). This might be a huge catalog, it might be digital.
Ask if there are any other wheelchair suppliers that you could work with and why this one was chosen. It’s good practice to question everything so that you can have the opportunity to make a better decision
When you find out when your appointment will be
Ask for the appointment to be at least 2 hours. If they can’t do that, ask for 2 appointments, and have the first one sooner.
Ask about what the general procedure will be, so that you can be prepared to talk about what parts you want.
During your appointment
Ask the wheelchair supplier a lot of questions about their service, such as:
Do you have any branches near me?
What times are you open? (make note that if you plan on having a job, their open hours are important)
What is the procedure if the insurance company rejects one of my parts? (and how to fight back and not give in)
What is the procedure for getting my chair after the insurance approves it? Where will I pick it up? What times can I pick it up? (think about how this might affect you if you have to travel the country to get your chair on a Wednesday morning)
(if you don’t know what to get) Based on the things I plan on doing, what have you seen similar people do/get?
(when they take measurements for the dimensions of the chair and the parts) Can you show me what this might look like on me? (they could outline a square to show you the size of your seat)
Which products have the best warranty?
Which products are known to not work or be the best? (this is important, the brakes that I have on my chair are known to be terrible)
Which products are known to be the most durable and or require the least amount of upkeep?
Ask if there is a place to see reviews for some products.
(after choosing all the parts for your chair) How familiar are you with these products/brands? Do you know if there might be any better options that require less upkeep or are more durable?
After your appointment
Keep in contact with the supplier and ask for updates on the approval process and once the items ship, ask to be notified when all the parts have arrived.
As soon as the insurance approves the parts, the time they arrive after being ordered is unknown, still, ask to talk about setting up a time to get your chair.
Talk about where you can pick up your new chair, make sure that it is at a branch location close to you and at a time that works for you.
I recommend buying some fast bearing for your front wheels, the bearings that come with the chair are cheap and slow. Have a look at these bearings and bring them with you when you pick up your chair.
When you get your wheelchair
Once you arrive, look over the chair and make sure it meets your standards and expectations. If anything is wrong with it, immediately tell them and ask what can be done to make the changes.
If all the parts are good, ask about how it was built and what tools were used, i.e. what tools you should have to do maintenance.
Ask about how to fix certain issues, such as if the front wheels become loose and start to wobble when you go a little fast.
Ask about how to change the wheels in the front and how the chair comes apart.
Ask how to fix any of the parts if they break and keep the chair from disassembling properly.
Ask about the procedure if the chair breaks in a major way and needs to be professionally fixed.
Ask about the procedure for getting new parts if one of them breaks prematurely.
Ask about possible modifications that can be added to the chair.
Ask them to measure the chair when it’s assembled and weigh it when all the parts are on it. Take note of this, it’ll be important for travelling.
Look at the bars on the wheels that you use to push, if they’re too far out, ask them to be moved in to make the chair a little slimmer.
If you remembered to bring your bearings with you, ask to have them put in.
Ask for the warranty information for the different companies that correspond to each part. That way, if a part breaks, you’ll know which company to call to claim a warranty on it.
I really hope all of this helps. It’s a lot of information, but this is one of those times that you get once chance to do it right.
This is how my brakes were just a few weeks after getting the chair.
My brakes clearly not working when I was on a slight (very slight) decline in a parking lot.
Immediate action item: Write these questions down in your notebook and start asking right away!
Summary:My experience when I got my first wheelchair was less than perfect. Luckily, I learned a lot from it and now you don’t have to make the same mistakes I did. Basically, you have to ask a lot of questions. The right questions. And take a lot of notes!
Overdeliver: One thing you might not think of is the backrest. When it comes to the backrest, you need to really consider what you’re getting. Think of the material, if it’ll be breathable during the hot summers or not (mines not). Think about whether or not it has lumbar support to help you avoid back problems. Another big part is the height. How high up do you really need the backrest to go? I recommend challenging yourself to get it just a little lower than you need so you build up some strength. Another important thing to consider is whether or not the backrest goes to the bottom of the chair. You absolutely want the bottom of the backrest to go down to your seat. If there is a gap, you might be showing the world more than you want to, and in the winter, cold winds will get to you. Make sure to get your backrest so that it only goes up as high as you want and it goes down all the way.
I’m part of the lululemon collective and will receive a commission if you make a purchase through the links below
Hey!
Every week, I look around and see what type of gear I’m using or anything I’ve come across that’s cool and useful. Something that has made my life easier and solves a problem I’ve had for too long.
I’ll be keeping these fairly short with one tool/gear item that I’ve used and I’ll talk about how it’s useful (solving some problems).
There are many ways to use everyday items in a unique way. As an engineer and minimalist, I like to use what I have and see if I can make it work. It’s a fun little challenge that keeps my brain sharp.
Today’s tools are belts, created by Arcade and lululemon. We have two styles, two problems and infinitely great ways to use them.
The problems we solve:
So, I have a strap behind my legs that keeps my feet from sliding off the back of my footrest, but I spend my entire day pulling my feet back on the footplate after they’ve slid forward as a result of bumpy pavement or sidewalk cracks.
Pockets. Pant pockets are near impossible to use while you’re in your chair. I often go out for a walk and need to carry my keys, wallet, catheter and phone, but they’ll either fall out of my pocket or wont fit. Keeping them on my lap becomes a bit much and they easily bounce off.
Luckily, we have a solution for these problems, it’s more than a solution. It’ll tell the world that you mean something, that you’re on your way to success! (and you’ll feel as amazing as you look)
Contrary to popular belief, I’m a man who cares about style and presentation. Even if I do wear the same few clothes over and over again, I want them to be high quality clothes.
The solutions:
The Arcade belt.
It’s made for adventure, it’s durable, and it’s personal. There are many different styles for every mood and season.
This belt solves all of our problems. It’s easy to take on and off, it can even be useful when we’re not using it (like using it as a belt). It comes in many sexy designs, which means we look cool and get to show off a little. The size is adjustable so you can keep your legs where you want them. It’s a lot more versatile and when you watch the video below, you’ll see how it doesn’t actually wrap around where my other strap is. Best of all, the clip is super easy to put together and unbuckle. So, even if you struggle using your hands a little, it’s not hard at all!
Just when you thought it couldn’t get any better, imagine what you could do if the belt could also hold your keys!
Now we solve the second problem: Pockets.
You may have noticed that there’s a trend to wear a belt bag (fanny pack) across your chest. The timing has never been as perfect as now. Look trendy, be efficient, feel great!
This Fast and Free Run Belt is perfect for keeping your keys and a few essentials ready to grab and toss on before you head out (keys are small and valuable, they easily fall off my lap)
The On The Beat Belt Bag is big enough to hold more essentials (even a catheter or two) and even though the model is a woman, I would proudly wear this as a man.
Try this gear out and let me know how much it helps!
(Just some over delivery) This is my “efficiency outfit” I can wash less with the anti-stink tech, they dry fast (I avoid the cost of using a dryer), makes the perfect first impression and I feel like I can do anything (I can go to work and then workout without changing)
Wheelchair DNA 
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