A Story on Growing Confidence and Pooping With the Door Open

How courage and confidence have become my priority for putting myself first.

The university I attended had a lot of inaccessibility. So much so that there was a group that started just to address it, I’m talking about basic ADA compliance. There’s a bathroom with only a single stall that when I go in, the wheelchair doesn’t even get all the way in and so the stall door won’t shut.

Once I had to go to the bathroom (a different one than mentioned above), and the larger stall was occupied. As an aside, I try not to get upset at people who use these stalls and don’t need to, because honestly, who would want to do business in the small tight stalls? Anyway, I really had to pee and ended up peeing my pants because of the stall being occupied. I even took the elevator to another floor and found the larger stall in use there as well. I took the next week to do my schooling from home to avoid this happening again.

When I came back to the university campus, my friend introduced me to a new way of thinking. It’s called “dude, who cares, do what you need to do.” In action, this translates to: when I have to pee, as long as I’m in the bathroom, I’m going to pee. I don’t need to go into a stall, I can just go next to a urinal, and if not that, then just face a wall or a corner. If I need to poop, I don’t need a big stall, I just need to get close enough to a toilet so I can transfer onto it.

Here’s the story, and not the only instance of this. I was at whole foods eating some food and waiting for a tow truck to pick up my brother’s car and we got hungry. As a human wont, I had to pee. On my way to the bathroom, the very kind security guard came running down the hall after me to give me a lot of help (more than I need, but I truly love people of this kind heart). He held open the door and was seemingly ready to do anything. He actually waited for me to finish so he could open the door for me on my way out and asked many times if I needed help with anything.

Here’s the thing, there were two stalls, one larger and one smaller, both occupied. Without hesitation, I go to the urinals to pee, wash my hands, and go back to finish eating. As soon as I get back to the table, I realize I need to poop. I usually can tell just like anyone else, but it’s hard to predict when I’ll have waited too long, and then I’ve reached the point of no return. This was a moment of no return, I had waited too long. I bolt back to the bathroom, hoping to avoid the security guard’s notice, and knowing that at this point, the best I can do is minimize the trouser attrition.

Naturally, the larger stall is taken, but I entirely do not care. I go into the smaller stall, the door doesn’t shut but I can get in. Facing the toilet, I 180 transferred while taking off my pants and released the Kraken. All the ruckus doubtless grabs the attention of the guy in the larger stall, who certainly feels poorly about himself (and I’m not without a shit tonne of resentment). I’m still on the toilet, (with my pants up at this point) when the guy gets out to wash his hands and I stare deep into his soul when he catches my glance in the mirror.

I finished up, washed my hands, went back to our table, finished my food, the tow truck came, we left to go to the broken down car, and I went home to shower.

The point is, I’m absolutely done letting anything get in my way when I need to do something, especially when the implications are trouser attrition. This requires a lot of confidence and courage, it’s harder to do at work where I’ll see these people day in and day out, but they won’t want to admit it happened any more than I’ll want it to happen. Ultimately, it’s a mindset and value change, it’s not easy to do, but necessary if you respect yourself.

Why You Need to Wear a Seat Belt in a Wheelchair

Reading time: 3 minutes

When I was in rehab, we were required to wear our belts and I didn’t like it. I don’t know exactly why, but I just didn’t want to wear it. I reckon it has something to do with being told I had to wear it.

When I was ordering my wheelchair, I almost didn’t get the seatbelt but I’m glad I did, I call it the adventure belt because, when I do have it on, it means that something awesome is going to happen.

I was once told about a guy who didn’t have a seatbelt or brakes for his chair, which is ridiculous, and hopefully, you don’t do that.

When I first got my chair, I strapped the belt below my seat and ignored it. I thought it was the dumbest thing ever and I was adamantly against it.

Then, I started to get into the Danger Zone, where things get exciting. Going up and downstairs, doing tricks, falling a few times, working out, doing handstands, falling some more, getting up ledges, and probably more that I can’t think of.

Imagine being in the car without a seat belt and hitting the brakes, your body moves forward. Think of speeding up quickly, you move back into the seat. Wearing a seat belt in my wheelchair keeps me locked in so that I don’t shift around while moving and gives me better control over the chair I’m in.

When I go into a door with a ledge, I do a wheelie, get my front wheels in, and then pull the rest of my chair up. Without my adventure belt locked in, I would likely pull my body out of my chair. Same for going upstairs. I haven’t made a video about how to do it yet, but it wouldn’t be possible without an adventure belt.

I’ve fallen a few times, at the time of writing, I’ve fallen six times. Each of them is a pretty good story and only a few of them I wasn’t wearing the belt. From experience, having a belt on helps big time with falling. Imagine you’re going down a fairly steep hill in the grass, you hit a soft spot and your front wheels dig in. You’re already tipping forward from going down the hill and so you fall forward. You could either catch yourself or at least keep the fall from getting too bad and use your hands to twist your chair to the side to avoid falling anymore.

If you weren’t wearing a seatbelt, you would’ve fallen forward and gotten dumped straight out of your chair, possibly caught yourself but more likely tumbled down the hill a bit and maybe even get knocked by your wheelchair falling after you.

When it comes to working out, the best example is doing pull ups. When I was in rehab, we tried many ways to do pull ups but never thought about keeping me in the chair. I’m here to tell you that staying in the chair is the best way to do it, and that’s accomplished only with the use of the adventure belt.

Even having the belt a little loose is all right, so long as you have it on.

There have been many times in the city where I hit a bump or crack that sticks out far too high and it brings my chair to a complete stop, I haven’t fallen yet, but I sure would’ve if I hadn’t had the adventure belt on.


Immediate actionable items: If you’re in a wheelchair, start using your belt. If you already do use your belt or you aren’t in a wheelchair, then I’m just preaching over here.

Summary: Wearing a seat belt in a wheelchair is important for those who want to do crazy things and avoid falling out of your chair.

Overdeliver: After a while of using your seat belt in your wheelchair, you may notice the clamp that attaches your belt to your chair moved. Mine moves all the time because of all that I do. You can easily find the right tool and loosen it, put it back to how it was, and then tighten it back up. For the chair I use, when the clamp moves out of place, it will hit the spokes of the wheel, which shouldn’t happen.

Paraplegic Gear/Tools of the Month: Going for Speed

The Best Bearings for Your Wheelchair

Reading time: 4 minutes

Alright. Another month has passed and here we are with more life improving gear. for my favorite month – July – we’ll be looking at my favorite mindset. Going faster.

The problem we solve here is going slow. I really don’t like going slow. Another way to frame it is reducing the friction, so you use less energy and go faster and further.

I really don’t like working against friction. Right now, as I’m writing this in Australia, my bearings are completely shot. Rusted and broken. I’ll be heading home in 18 days, so I’m just camping out in the slow grounds until I get back home and address this monumental issue.

When my bearing are either broken or just the standard ones that I got with the chair, I feel like I’m pushing against some force. I actually am. Even when going downhill, I’ve noticed that I hardly pick up any speed if at all.

Having the least amount of friction allows you to exert less energy to go faster. It means that one push takes you further and you’re more agile. You’ll be surprised at the difference from the gear below.

Solutions:

  • Front wheel bearings
  • Back wheel bearings

The bearings that came with my chair, when I had them in the air and gave them a spin,they spun for only a few seconds. Once I upgraded, they spun for minutes.

Front Wheel Bearings

Front wheels in a wheelchair, I believe they’re called caster wheels, typically will be compatible with your everyday skateboard bearings. A very good thing because there’s a big market for skate bearings. The technical bearing size is 608.

You can either go all out if you’re serious about having the best or go decent if you want the minimum best.

One thing to note is that most skateboard bearing packs come with 8 total bearings, 2 for each wheel. Wheelchairs only have 2 front wheels, so this is like buying double.

Starting at the minimum end. Probably the best bearings you could get at the lowest price. Anything less than these shouldn’t be considered.

The recognized standard bearing. Reds. These will give you what you need and might be good enough if you want to go fast.

Pros

Cons

  • Will rust over time
  • Not the absolute best you can get
  • Other Bones Bearings have cooler stickers, but that’s an opinion.

Before we get to the top two bearings. Here’s a good in between option that I found.

Pros

Cons

  • Not widely known, not by me at least
  • Will also rust over time
  • Might not come with a sticker

For those that live in the fast lane, these two bearings are for you. On the expensive side, but commonly known as the fastest bearings around.

First up:  Bones Swiss Ceramic

Pros

  • Literally the very best
  • Super fast
  • Bragging rights
  • Super cool sticker to brag about
  • Ceramic doesn’t rust
  • The best

Cons

  • Only the balls are ceramic and the casing could rust
  • Expensive
  • Made out of toilet

Second up: VXB Full Ceramic

Pros

  • Individually sold bearings (can buy 4 instead of the pre-packaged 8)
  • Full ceramic to go even faster (less friction)
  • Not so expensive
  • Uses black ceramic balls

Cons

  • A ceramic case can crack, which will ruin the whole thing
  • Not skate rated like Bones
  • I couldn’t even find an ABEC rating
  • No sticker

Back wheel bearings

The bigger wheels on wheelchairs are much like (if not exactly like) bike tires. Luckily, bike (bicycle) bearings are also an existing market that we can dip into, and the water is warm. I’m back after eating dinner and doing more research, the water is luke-warm but erring on cool.

Bike bearings are few and far and they vary. I recommend taking off your wheel and checking what bearing you have. This is what mine looks like:

Cosmo’s wheel bearing

As you will struggle to see, it says “R8 2RS.” I also struggled. After some searching, I found that this bearing is 1/2 x 1 1/8 x 5/16 (inches), which is also, 12.7 x 28 x 8 (millimetres). Also called an R8ZZ or a 6001 bearing.
The measurements are Inner diameter x Outer diameter x Width

There aren’t any big players that make Swiss bearings of this size, or anything of distinct caliber like Bones.
I’ve found generic or ceramic.
Generic will get you medium results – probably better than the bearings that came with your chair but nothing mind blowing.
Ceramic (with a metal casing) will get you the results that come with ceramic, faster and better.

Here’s what we got. Keep in mind these are both individual bearings, so you’ll have to buy four.

If you want to look for another size bearing and you figure out the metric size or the name (6001, etc.) filter through this page to find a good bearing.

To make this process much more efficient, here are some amazing tools

Bearings are as hard to take out as

Bones Bearings Press Puller

To take off your caster wheels, you’ll need some hex keys (also used for bike maintenance)

Texas Best Folding Metric and SAE Hex Keys


Overdeliver? Absolutely.

There is a next level of speed, not the drug, and it involves some sauce. Don’t get lost in the sauce, you can actually use too much.

Bones Speed Cream Skate Bearing Lubricant

Paraplegic Gear/Tools of the Month: The Belt

Read time: 3 minutes

I’m part of the lululemon collective and will receive a commission if you make a purchase through the links below

Hey!

Every week, I look around and see what type of gear I’m using or anything I’ve come across that’s cool and useful. Something that has made my life easier and solves a problem I’ve had for too long.

I’ll be keeping these fairly short with one tool/gear item that I’ve used and I’ll talk about how it’s useful (solving some problems).

There are many ways to use everyday items in a unique way. As an engineer and minimalist, I like to use what I have and see if I can make it work. It’s a fun little challenge that keeps my brain sharp.


Today’s tools are belts, created by Arcade and lululemon. We have two styles, two problems and infinitely great ways to use them.

The problems we solve:

  1. So, I have a strap behind my legs that keeps my feet from sliding off the back of my footrest, but I spend my entire day pulling my feet back on the footplate after they’ve slid forward as a result of bumpy pavement or sidewalk cracks.
  2. Pockets. Pant pockets are near impossible to use while you’re in your chair. I often go out for a walk and need to carry my keys, wallet, catheter and phone, but they’ll either fall out of my pocket or wont fit. Keeping them on my lap becomes a bit much and they easily bounce off.

    Luckily, we have a solution for these problems, it’s more than a solution. It’ll tell the world that you mean something, that you’re on your way to success! (and you’ll feel as amazing as you look)

Contrary to popular belief, I’m a man who cares about style and presentation. Even if I do wear the same few clothes over and over again, I want them to be high quality clothes.

The solutions:

  1. The Arcade belt.


    It’s made for adventure, it’s durable, and it’s personal. There are many different styles for every mood and season.

This belt solves all of our problems.
It’s easy to take on and off, it can even be useful when we’re not using it (like using it as a belt).
It comes in many sexy designs, which means we look cool and get to show off a little.
The size is adjustable so you can keep your legs where you want them.
It’s a lot more versatile and when you watch the video below, you’ll see how it doesn’t actually wrap around where my other strap is.
Best of all, the clip is super easy to put together and unbuckle. So, even if you struggle using your hands a little, it’s not hard at all!

Using an Arcade belt to solve problem 1

Just when you thought it couldn’t get any better, imagine what you could do if the belt could also hold your keys!

Now we solve the second problem: Pockets.

You may have noticed that there’s a trend to wear a belt bag (fanny pack) across your chest. The timing has never been as perfect as now. Look trendy, be efficient, feel great!

lululemon has many options that are both fashionable and useful. Almost all of them have secret compartments and tiny details that are worth showing off to your friends.

  1. This Fast and Free Run Belt is perfect for keeping your keys and a few essentials ready to grab and toss on before you head out (keys are small and valuable, they easily fall off my lap)
  2. The On The Beat Belt Bag is big enough to hold more essentials (even a catheter or two) and even though the model is a woman, I would proudly wear this as a man.

Try this gear out and let me know how much it helps!

(Just some over delivery) This is my “efficiency outfit” I can wash less with the anti-stink tech, they dry fast (I avoid the cost of using a dryer), makes the perfect first impression and I feel like I can do anything (I can go to work and then workout without changing)

Shorts – Men, Women

Pants – Men, Women

Shirt – Men, Women

Socks – Men, Women

Underwear – Men, Women



PS, remember to share this info, it’s too good to keep to yourself!


If you find any cool gear/tools, leave them in the comments and there’s always a good chance you could write a post for this site!

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